March 24, 2011 @ 3pm

    Just returned from Doctor Appointment at the clinic. Sara had a bad morning and we almost did not make it.  Got right in to see Dr. Lin who took one look at Sara and said "better wait another week".   He re- evaluated her meds to help with the nausea and pain that she is still experiencing in waves. Some days she is really okay, but just happened to be really bad at this very important appointment when we were hoping to be able to start the Chemo finally which, like I have said before and he reiterated today, would cause rapid improvement.  Untill she can keep down oral meds, she cannot take oral chemo.
    Then we had a meeting with the clinic pharmacist who explained the whole chemo process and said if she can do good for two or three days, she can try the chemo pills.  Also the $#^&^%ing insurance co. has to approve the treatment which they have not done as of today. Are you kiddin' me?  If anyone wants to really talk health care reform {you know who you are} then catch me on a good day and I will tell you, reform is too gentle a word for the changes that need to be made.  I also will say the medical staff of these facilities and the people we come in contact with on a daily basis in regards to all of this stuff are absolutely wonderful, kind and patient.  The shuttle driver kept apologizing for the pot holes as he could see how sick Sd was. 
    So, we are on a mission for sure to keep Sara stable by getting her to eat {small amounts} and meds on a consistent schedule. Also, Roy, the pharmacist let me put him on speed dial. If I do not call anyone or write in here for a few days it is because I am concentrating.  Jenn an Jerry also are forbidden to answer the phone when we are in Sd's room and doing TPN and /or meds and/or foot massage and/or maintaining everything. Jenn is learning the TPN which is basically Sara's only nutritional support. She has not eaten in going on 8 weeks. The tube goes directly to her heart, so it is pretty important to concentrate.  So don't think we are rude. It is really hard. Try holding your arms out to the side for 10 minutes without letting them down.  That is what it feels like.  Sara is like holding back the running of the bulls in Spain or wherever.
   And don't worry about Lucy Dog.  Patty is taking care of her.
I love y'all!!