Sara and Sarah went to the Doctor appointment in Seattle today and yesterday for Scans and bloodwork. It is all good news. The tumors have shrunk 50% since the last CT scan 3 months ago. Her bloodwork is fine now but she definitely has to stay on regular blood testing. Dr. Lin said to come back in 3 months and possibly in 6 months she could have surgery that would remove whatever tumors are remaining and to get rid of the main ones. His analogy was "they are trees and we want them to be seeds." She will have to continue chemo for an unspecified amount of time to keep it under control, but Dr. Lin freely passed around the word 'remission'. Also her chemo will be cut back as much as possible so she won't have the super bad side effects.
He also told Sara D that she was no longer a priority patient. For once Sara is happy to be considered boring. This is all such wonderful news and we are all so grateful and relieved. All the support and energy and good vibes are DEFINITELY a contributing factor. Lauren's persistent acupuncture treatments and sound advice. All the help Sara recieves from everyone, her strong will to overcome this nasty disease,{"to hell with it!!"} I should hope we all can be this strong in the face of adversity. Also, the lesson in friendship we have all learned from Sara and Sarah and their entourage. Can't even begin to express how much our family means to us. Nurse Erin is amazing. Okay, okay, I can't take anymore.....
posted by Colleen
Tuesday, August 16, 2011
Sunday, August 7, 2011
August 7, 2011
One thing for sure, time flies in the summer in North Idaho. Sara did end up getting a blood transfusion and spent the day at BGH in Sandpoint getting 2 units of blood and a dose of platelets. Her platelet levels were at 16,000 and 20,000 is very low. Her hemoglobin level was 6.6. The Doctor in the ER said that chemotherapy can cause this to happen. She is going to Seattle again later in August.
Sara has been otherwise enjoying the summer. Got her pontoon boat, "The Dalaboat" running and has been on it as much as possible. It is probably the most relaxing place to be in the world.
Also, she went on her first flight lesson. Dr. Lin told her to just go out there and do whatever she wanted, which she has done since she was two, but now she has a license from a doctor. So, heads up {or not} about the flight lessons. She is fine. The transfusion is like getting your tank filled, Erin said. But we are keeping a close eye on her so we catch it sooner. If anyone sees her turning funny colors, call me! She is not a very good complainer. She didn't get that from me. Enjoy the summer. Love to all!!
Posted by Colleen
Sara has been otherwise enjoying the summer. Got her pontoon boat, "The Dalaboat" running and has been on it as much as possible. It is probably the most relaxing place to be in the world.
Also, she went on her first flight lesson. Dr. Lin told her to just go out there and do whatever she wanted, which she has done since she was two, but now she has a license from a doctor. So, heads up {or not} about the flight lessons. She is fine. The transfusion is like getting your tank filled, Erin said. But we are keeping a close eye on her so we catch it sooner. If anyone sees her turning funny colors, call me! She is not a very good complainer. She didn't get that from me. Enjoy the summer. Love to all!!
Posted by Colleen
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