April 30, 2011

    Insurance, schmimsurance.  Being sick is no fun. Meds, peds, bandaids, laxatives, brown stretchy wraps, new smell shampoo, shabby chic bedding, prune juice, cotton swabs, vomit bags and extra paper towels.  No canned dog food.
    Flip flops, fuzzy sox, bendable straws and shmooze. 10 boxes Girl Scout Cookies.
Hair cuts at home, retail therapy, philips milk of magnesia and ensure.  Every color of Gatorade, little white pills, big red ones.  Long un-fun trips. Cozy jamas.
    Hair clips, pony tail holders, 24 kinds of tea, alcohol swabs, q-tips and bobby pins.
Alkaline, Cetabine, Iodine, Assinine.
    Plastic tubs and file drawers, strong coffee, erase boards and more vomit bags.  Big calendars, glasine envelopes and gas. Yogurt, soup, yogurt, soup, yogurt, soup.
                   Get well-thy soon!

The tables turn

Love the poem mom posted by my grandmother:)

Tables have turned, mom is now laid up, she had her surgery yesterday and now the 2 of us can't help each other, otherwise we would end up so looped up because we cant keep it all straight. Don't mix the vicodin and the dilodid mother and daughter duo..... phewwwwww.

Marla saved the day and stayed with me to help with my TPN new regime, which is cutting my calories on the TPN by half:) making up the other half with actual food.  Also,bringing the time I have to wear it 10 hours vs. 14 hours.  This is a big luxury deal, being hooked up to an ugly black back pack is not what I call fun, at least I only have to wear at night so it does't have to match my bed attire, but when you have to get up 4-6 times throught out the night beause your being loaded up with liquid calories and of course..... cant forget the ugly backpack has to come with you..... put it this way I cant wait until I can just eat real food.

Mom will be back on here with her witt, I won't bore you with me trying to write with any kind of witt..... 

Love to all!

April 26, 2011

Poem by my Mom, Marie Garvey that reminds me of Sara D.

Interlude

Out of the storm for a little while

Safe in the warmth and light

Out of the noise and the hurry

The cares of deceit of life

Safe and secure and rested

New strength to meet new pain

Then out of the warmth and light

And into the storm again

Marie Powell Garvey

April 26, 2011

    Well, Sara is mostly sleeping through this bout of chemo.  She did so well when she was on her 7 day break I think we all were so thrilled to see her eating and getting around, we were kind of jumping the gun.  Gotta stay patient.  The insurance case manager asked how she was doing with all this and I had to stop and think about how I would be doing if it were me.  It was not a pretty picture.  But it made me realize how Sara {That's my daughter...} Has handled this with grace, patience and aplomb.  She never gets crabby or unruly or gets too bossy.  She always is concerned about how everyone feels and if they are too tired or need a pedicure. She still wants to pay for everything, even food,  and she is not even hardly eating.  She appreciates every tiny effort, cards, unexpected gifts, gesture and kind words.  If she were us and we were her, she would like so be there for us.  I am so proud of My Daughter through this, the worst scenario anyone could endure. 
   

Did I say.......

I don't think I said thanks for the Spuds lunch mom, "thanks for lunch!".

Also, thanks to the group last night, talking benefit stuff..... it will be fun! Did I say I LOVE GSS's hair! And thanks to Howard for the good advice.... the benefit is on it's way to getting whipped into shape:)

Ok, going back to sleep, these pills are exhausting.


~S

April 21, 2011

    The look on the Drs. face said it all yesterday. Nurse Erin went to the appointment also to ask pertinent questions and hold on tight to Sd while she got her Big Shot. Which did not hurt like a %%$#%^ like the last one but was still shocking enough to give Erin a free neck adjustment when Sara threw herself at her. The Doctor  was astonished at how good Sara looked.  She had a great 7 day break from chemo and will start again today.  We went to Spud's after the appointment and ate a huge lunch.  It was a real pleasure to buy Sara lunch.  The day before Sara and Jenn went for a ride to 'Fonners Berry' and had lunch there also. I am so thrilled to see her eating.  Had Oreo ice cream bars for dessert.
    Her vital signs are all good and she is responding very well to treatment. Do not underestimate the power of prayer, good vibrations,  family and friends. And a big High Five to her superior caregiving team. Thanks to all.

April 17, 2011

    Well, Sara is doing very well.  She is telling all her caregiver's to leave her alone for a while. Guess we all kind of started getting too bossy.  Plus she can't find anything in her kitchen because everyone puts stuff away in a different place. We are all certainly there if she needs us!  She is eating more and more and has a ferocious appetite. Wednesday is the doctor appointment and then we will see what is going on. Maybe re- evaluate her meds so she doesn't have to be asleep all the time.  I know one thing, it is all good.  Love y'all!