Well, we will be seeing Dr. Mason today at Bonner General. She is going to be Dr. Lin's contact here. Both are well re-knowned oncologists. Dr. Lin has MD Anderson in Houston on speed dial. He worked there. We have everything we need now to get started with the treatment. Just have to get going on it ASAP. There are like a kerbillion roadblocks at every turn. It is really a challenge for Sara and her caregiver people to stay on top of things. I have a whole new respect for anyone experiencing a situation like this and I had a ton of respect before. Someone was complaining about the weather yesterday and I actually had to look outside; what weather?
Sara had a very nice birthday and got several flower arrangements. One from Petal Talk here in Sandpoint that is gorgeous! Thank-you everyone for your good wishes and kind words.
Thursday, March 31, 2011
Wednesday, March 30, 2011
March 30, 2011
Today is Sara Dalebout's Birthday and she is getting a a silver bullet from Fed X to do some ass kickin'.
Let me just say this, Mr. Cancer, you picked the wrong person to mess with. Not only Sara, but about a jillion other people. Happy Birthday dear daughter!!!!!
Let me just say this, Mr. Cancer, you picked the wrong person to mess with. Not only Sara, but about a jillion other people. Happy Birthday dear daughter!!!!!
Tuesday, March 29, 2011
March 29, 2011
Still on hold for insurance approval. Gonna start throwing around the 'L' word. I will post again today if there is any word. Sara is ready to have some major treatment and get this under control. Sarah Hess, Jenn, Chelsea and Erin have her feeling better than ever. Come on Blue Cross of Idaho!! {whoops}
Monday, March 28, 2011
March 28, 2011
Well, Sara is sleeping comfortably. Sarah Hess is by her side and taking excellent care of her. I have lost my voice { real funny, I allready heard all the jokes..} and will have to be careful if I am sick or not as Sara's immune system is seriously compromised. Which is our main reason to keep her isolated and visitors limited. Even her Mom.
I was thinking about all the prayers and good thoughts and started wondering just what they sound like. I know if I had a minute with God, I would have to ask why? Even though we should not question why. But in all my human frailness, I just can't help it. All the books on why bad things happen to good people, All the self help psychology, all the cliche's and platitudes, Caroline Myss, Carl Jung, Wayne Dyer, Dr. Phil. When are they gonna kick in? I think some people have this super inner strength that gets them through. You can't read it in a book, you can't buy it, you can't borrow it and you can't fake it. You either got it or ya don't. Sara has it. No doubt.
I was thinking about all the prayers and good thoughts and started wondering just what they sound like. I know if I had a minute with God, I would have to ask why? Even though we should not question why. But in all my human frailness, I just can't help it. All the books on why bad things happen to good people, All the self help psychology, all the cliche's and platitudes, Caroline Myss, Carl Jung, Wayne Dyer, Dr. Phil. When are they gonna kick in? I think some people have this super inner strength that gets them through. You can't read it in a book, you can't buy it, you can't borrow it and you can't fake it. You either got it or ya don't. Sara has it. No doubt.
Sunday, March 27, 2011
March 27, 2011
So We think the new big patch is working. If Sara continues to improve and can eat real food, I am confident Dr. Lin will start the treatment by Thursday at the next appointment. That is if the insurance company does not keep denying the request for this particular chemo. The treatment he wanted to give her is a combination of three IV medications. One is not available any more so he went to this oral medication that is two pills. Which I cannot pronounce. It is cutting edge treatment and that is why insurance companies can fool around. If tomorrow I donot hear from our new best friend, Roy, the pharmacist, I will accidentally put the insurance company's name on here. So if they deny these pills, she will have to take something that is not the first choice. What I am trying to say is, does this insurance company know who she is???? !!!!
Erin is back on the scene today to keep Sara on track. It is vital that we donot get distracted from the schedule. I feel like we should be playing "Girl from Ipanema" {elevator music..}with all this waiting. Thanks again for everything everyone.
Erin is back on the scene today to keep Sara on track. It is vital that we donot get distracted from the schedule. I feel like we should be playing "Girl from Ipanema" {elevator music..}with all this waiting. Thanks again for everything everyone.
Saturday, March 26, 2011
March 26, 2011
Start each day with a hug. The sqeaky wheel gets the grease. The road is long, with many a winding turn. She ain't heavy; she's my daughter, sister, friend, cousin, auntie, niece, grand daughter, co-worker, friend of a friend, neighbor.
The new patch that lasts for 7 days is apparently working plus her new med regimen. {Feel free to correct my spelling} {Shanna} This morning Sara feels pretty damn good. She is getting an appetite for real food. Like filet mignon, brokli in sauce, fresh strawberries, blueberries, the 35.$ worth of fresh fruit from Whole Foods that she was craving but cannot eat, tangerine italian soda; only her stomache is saying mashed bananas, blendered oatmeal, tapioca pudding and smoothies. It still is a step in the right direction. Once someone said they spent the day with a child and really got the message about living in the present moment. That is how this feels. Progress is painstakingly slow and to be impatient only causes agravation. Everyones good vibes and wonderful encouragement is what keeps us, Sara and her Dreamteam caregivers, afloat. Ride on.
The new patch that lasts for 7 days is apparently working plus her new med regimen. {Feel free to correct my spelling} {Shanna} This morning Sara feels pretty damn good. She is getting an appetite for real food. Like filet mignon, brokli in sauce, fresh strawberries, blueberries, the 35.$ worth of fresh fruit from Whole Foods that she was craving but cannot eat, tangerine italian soda; only her stomache is saying mashed bananas, blendered oatmeal, tapioca pudding and smoothies. It still is a step in the right direction. Once someone said they spent the day with a child and really got the message about living in the present moment. That is how this feels. Progress is painstakingly slow and to be impatient only causes agravation. Everyones good vibes and wonderful encouragement is what keeps us, Sara and her Dreamteam caregivers, afloat. Ride on.
Friday, March 25, 2011
March 25, 2011
So, today we {proverbial we....} are taking it easy. Totally staying on med schedule. Jenn has mastered the TPN so is on board for nutrition. Gerald's "Nutrition Break" club is taking on a whole new meaning.
We are hoping to get the chemo treatments going then continue at home. The side effects of this particular trearment are not suppossed to be drastic.
The stages of awareness of are slow in progress. At the Clinic, you can see the resigned look of acceptance on peoples faces. Luck is when the other guy gets hit with the arrow. Now, they are in it for the battle. {Sara's friend Dawn, who lives close by, even sent little plastic army guys.} There is still laughter and jokes. The strength of these people would put us all to shame for our petty grievances. This is a very hard lesson.
Sara will get through this, but it will forever change the way we look at life. I think her experience will affect the way we all see things. Good and bad. One thing for sure, Friends and Family are #1. You cannot imagine what it means to have that support. THANKS!
We are hoping to get the chemo treatments going then continue at home. The side effects of this particular trearment are not suppossed to be drastic.
The stages of awareness of are slow in progress. At the Clinic, you can see the resigned look of acceptance on peoples faces. Luck is when the other guy gets hit with the arrow. Now, they are in it for the battle. {Sara's friend Dawn, who lives close by, even sent little plastic army guys.} There is still laughter and jokes. The strength of these people would put us all to shame for our petty grievances. This is a very hard lesson.
Sara will get through this, but it will forever change the way we look at life. I think her experience will affect the way we all see things. Good and bad. One thing for sure, Friends and Family are #1. You cannot imagine what it means to have that support. THANKS!
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